Being diagnosed with NF2 is not fun (even though I really can’t remember it for myself). I never really felt much like an NF2er until my late teens as I could hear and was physically normal for the most part. I felt as though the surgery that took my hearing, my balance, and (I thought) my life was the real “diagnosing moment”.
I hid away for the most part staying in my room not really being the person I was before hand. I hated not being able to hear, the looks I would get when I did not walk right, didn’t understand, they drove me insane. I pretty much hated my life for a while and was scred of each and every day that came to pass.
Admittedly this slowly faded, but, like a scar, was still subtly there. I remained skittish of big groups, hated speaking to people who didn’t want to try to understand or at least compensate for my hearing, and so on. Lexa came along and I got even better, not great but better.
Just a day ago I believe she showed me something that really helped me out. If you can have NF2 AND life, and still walk around with a smile on your face, there are gonna be people who are going to hate you or feel uncomfortable around you. THEY ARE MOST LIKELY JEALOUS! You have been through a personal hell and dealt with life’s drama and you are still smiling and going on, they probably hate getting out of bed in the morning. Now this is not to say all people with NF2 are like this, and not to say all people without it are hating on you. Just know behind those mocks and frowns and jerky comments, you outta be proud, they want your outlook on life.